Autism in later life

In short

• You can ask your GP about an autism assessment at any stage of adult life.
• In England and Wales, councils must assess any adult who may have care and support needs, and carers can ask for their own assessment.
• Care providers must make reasonable adjustments for disabled people, including autistic people.
• Peer support, advocacy and local groups can help at every age.

Getting a diagnosis later in life

Many autistic people are not diagnosed until adulthood, and some are diagnosed later still. A diagnosis can help you understand yourself and explain your needs to others. Whether to seek one is your choice.

The NHS adult assessment asks about your early life, your home, your work or other activities, and people who know you now or knew you as a child. It may include questionnaires and one or more appointments with a team.

Gather what you can before your appointment, such as old school reports, letters, or memories from family members. These help the team build a fuller picture.

If you disagree with the result, you can ask the team to explain its decision, or ask your GP for a second opinion.

Social care assessments

In England and Wales, section 9 of the Care Act 2014 says a council must assess an adult who may have needs for care and support. This applies to older adults too. The assessment looks at your needs, not at your diagnosis.

To ask for an assessment, contact your local council's adult social care team. Assessments are usually free. You can bring a friend, relative or advocate to help you explain your situation.

Scotland and Northern Ireland have their own social care arrangements. Check with your local council or health and social care service.

Care homes and adjustments

If you or a relative move into a care home or other care setting, ask how it supports autistic people. Useful questions include:

• How do staff learn about your routines, sensory needs and communication style?
• Can you have a quiet space, a consistent carer and a predictable routine?
• How do staff manage changes, such as moving room or a change of staff?
• Who is your named contact for decisions?

Under the Equality Act 2010, service providers must make reasonable adjustments for disabled people. Ask for the care plan in writing, and review it regularly.

Support for older carers

If you care for an adult autistic relative, you can ask the council for a carer's assessment in England and Wales. Section 10 of the Care Act 2014 requires the council to assess whether a carer has needs for support. The assessment can look at your health, your need for breaks and the support you need to carry on caring.

Ask about respite, breaks and local carer groups. Carer support can make a real difference over time.

Peer support

Peer support can help at any age. Autistic-led groups, online communities and local clubs can offer connection and shared understanding. Look for groups that fit your pace and energy, including daytime or quieter sessions.

Practical first steps

1. Talk to your GP if you want to ask about an assessment.
2. Contact your council for a needs assessment, or a carer's assessment if you are caring for someone.
3. Write down your needs and preferences now, so they are clear to others.
4. Look for peer groups and advocacy support near you.

This guide is general information, not professional advice.