What happens after an autism diagnosis

In short

• After a diagnosis, the team may offer a review, a care plan or information about support.
• Read the report slowly, ask for explanations, and keep a copy in a safe place.
• Telling other people is your choice. You can decide who to tell, when, and how much to share.
• Many services decide support based on needs, so you may be able to get help without a diagnosis.
• Peer support from other autistic people and families can be helpful.

What happens next

A diagnosis is often the start of a process rather than the end. The team may arrange a follow-up appointment, or they may suggest a review after some time.

Depending on the service and your situation, you may be offered:

• Information about local support services.
• A care plan or support plan.
• Advice for your school, college or workplace.
• A referral to other professionals, such as a speech and language therapist or occupational therapist.

If you do not receive this information, ask your GP or the autism team what is available.

Understanding the report

The report should explain what the team found. It usually includes a summary of the assessment, the outcome, strengths and support needs, and any other conditions that were considered.

It can help to:

• Read it once, then come back to it later.
• Highlight parts that you want to discuss.
• Write down questions and ask the team to explain any terms you do not understand.
• Ask for a copy for your own records, and check that it contains your correct details.

You can share the report with people who need it, such as your GP, school or employer, if you choose to.

Telling other people

Telling other people is optional. Some people tell family and friends straight away. Others wait until they feel ready, or only share with people who need to know.

For children, you may want to talk to the school about support and how the child would like to be described. For adults, you may decide whether to tell an employer or a university. You do not have to explain your diagnosis to anyone who does not need to know.

Many services look at what you need rather than at a diagnosis alone. For example, some support decisions are based on needs assessments or on information about how you are affected in daily life. Ask each service what evidence it accepts.

Support and peer groups

Some people find it helpful to meet other autistic people or families who have been through a similar experience. Local and national organisations run groups, online forums and events. These can offer practical tips and a sense of community.

If you are not sure where to start, ask your GP, local council or the NHS autism team for information about local groups. Advocacy services can also help you understand your rights and speak up for your needs. The National Autistic Society and Autism NI both offer information for people in different parts of the UK.

Looking after yourself

A diagnosis can bring relief, questions, or mixed feelings. There is no right way to feel. If you find things hard, speak to your GP, or contact a service that supports autistic people. If you are in crisis, see the guide on staying safe and getting urgent help.

This guide is general information, not medical advice.